Welcome To www.LupusMCTD.com
August 29, 2014, 03:58:36 am *
Welcome, Guest. Please login or register.

Login with username, password and session length
 
   Home   Forum Help Search Calendar Login Register  
Pages: 1   Go Down
  Print  
Author Topic: October 1-31 Lupus Awareness Month  (Read 2375 times)
0 Members and 1 Guest are viewing this topic.
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« on: September 30, 2007, 04:52:51 pm »

CandleSmilie Everyday for the month of October, let's all think of something we can post in the event researchers or medical students are reading that we would want their ears to hear from our voice, the Lupus Patient itself.

OK ... I'll start.

We hurt. We are not drug seeking. We are looking for answers for relief


NEXT!!!
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Fibro_Girl
Seeker of Support
*
Offline Offline

Posts: 3


« Reply #1 on: September 30, 2007, 04:56:44 pm »

I have fibro possibly lupus but no positive ANA reading yet. What research can be done to see the correlation between the two?
Logged

I hate fibro
sunnipearl
Guest
« Reply #2 on: September 30, 2007, 05:32:12 pm »

 nurse_ I HURT and I am LOOKING FOR A CURE! cray
Logged
AnnieHasFibro
Full Seeker of Support
***
Offline Offline

Posts: 553



« Reply #3 on: September 30, 2007, 05:45:49 pm »

I have fibro possibly lupus but no positive ANA reading yet. What research can be done to see the correlation between the two?
I'm like fibro girl as I too have fibro. I know fibro is just a symptom and lupus is an actual auto immune disorder. I would like to see more studies done on both.
Logged

Annie has fibro 33 no kids and no husband
3sisters
Lupus patient with overlapping accessories
Newsletter Editor
******
Offline Offline

Gender: Female
Posts: 1034



« Reply #4 on: October 13, 2007, 11:06:09 pm »


I want to see more research done on the anti Cardiolipin antibodies and their involvement/significance in SLE/MCTD disease process.

                                              CandleSmilie
« Last Edit: October 13, 2007, 11:07:51 pm by 3sisters » Logged

Living with NP-SLE/ MCTD and MS. Powered by the Indigenous 7th Sense and lots of meds... Living with an invisible illness sucks. But living with an UN-diagnosed and UN-treated illness REALLY sucks.
"Where HOPE is a Work in Progress™"
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #5 on: October 14, 2007, 01:48:27 am »


I want to see more research done on the anti Cardiolipin antibodies and their involvement/significance in SLE/MCTD disease process.

                                              CandleSmilie

Good one Kimmy!
I'll keep my eyes alert for any pr-or e news alerts
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #6 on: October 24, 2007, 09:46:49 pm »

Please visit this wonderful site for women & health awareness made cards..
http://www.zevcards.com/celebrateWomen.php


Her blog that states she makes Lupus cards for Women's health awareness is here
http://zevcards.wordpress.com/2007/10/22/featured-cards-of-the-month-celebrate-women-collection/
  CandleSmilie
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
sunnipearl
Guest
« Reply #7 on: October 26, 2007, 11:04:44 am »

 CandleSmilie
                           Kathy is October also cancer awareness Month? why do they have the same Months...Oh Maybe they don't have enough Months in a year for all these disease's..To sad..... nurse_ hsptl
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #8 on: October 26, 2007, 11:15:40 am »

CandleSmilie
                           Kathy is October also cancer awareness Month? why do they have the same Months...Oh Maybe they don't have enough Months in a year for all these disease's..To sad..... nurse_ hsptl

it's breast cancer awareness month in October too.
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
sunnipearl
Guest
« Reply #9 on: October 26, 2007, 11:34:30 am »

 prplbtfy I thought so Thanks  pkin
Logged
Pages: 1   Go Up
  Print  
 
Jump to:  


© Page Contents, Layout, Graphics and Design All Copyrighted by Credited Artists and are Not Public Domain.



LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
"Fighting From The Inside Out"..
A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
where to turn to for help, and much more to help others like me...


For more information
Call the National Domestic Violence Hotline at 1−800−799−SAFE(7233)



"The Meaning of the Words in the Second Amendment .... "That the people have a right to freedom of speech, and of writing, and publishing their sentiments;"

PRIVACY NOTICE: Warning--any person and/or institution and/or Agent and/or Agency of any governmental structure including but not limited to the United States Federal Government also using or monitoring/using this website or any of its associated websites, you do NOT have my permission to utilize any of my profile information nor any of the content contained herein including, but not limited to my photos, and/ or the comments made about my photo's or any other "picture" art posted on my profile. You are hereby notified that you are strictly prohibited from disclosing, copying, distributing, disseminating, or taking any other action against me with regard to this profile and the contents herein. The foregoing prohibitions also apply to your employee(s), agent(s), student(s) or any personnel under your direction or control. The contents of this profile are private and legally privileged and confidential information, and the violation of my personal privacy is punishable by law
Photobucket
© 2008 LupusMCTD Foundation of America - All Rights Reserved
Est.November 11, 2005
"We Understand What You Are Going Through"™
Powered by EzPortal

Powered by MySQL Powered by PHP Powered by SMF 1.1.16 | SMF © 2011, Simple Machines
Twitter Mod created by 2by2host.com - a web hosting company